I have no idea what I did to my poor lungs because they are filled with mucus. Sorry gross I know. And I have spoken with Superman today, and so has Wonder Woman. But this is so normal for me, that unless its a companied by a fever he will say oh well its OK we really can't do anything about as long as it is moving. But I actually feel OK. In GA, I would walk outside and the air would be so thick I could not take a breath in, in Tx it's so hot my bodies like hahah now we're going to dehydrate you! lol. No its really not funny but there is no happy medium. But please no I am stable, above my base line even. I have succesfully stayed stable every day. I am allowed up to 5 liters of fluid in day, and been stable at 2. I also have been breaking the liter bags up. I do feel odd not connecting 24 hours a day but its a nice feeling at the same time. Knowing I get the same amount of fluid but spread out thru out the day. I also have consumed so much water it's insane. I down bottle after bottle after bottle... you get it haha.
Also traveling with a disease is not as easy as one would thing it is. I actually lost weight through out the trip, it does not show thankfully. I have way to many food allergies so I am limited to what I can eat on the road, which is what I bring from home. I have to travel with ALL medications. Control, rescue, refills. IV bags are not easy to compact either. And i have to change a lot of this on the road. It gets so complex. We made it work.
I'll keep yall updated on how things work out.
Love Yall
Poppet
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