Thursday, December 28, 2017

New Years

Christmas has come and gone. I have a busy weekend and had no idea it was Thursday until home health called me. I am so backwards and just exhausted. Not as bad as I was, but 2 days of going non stop really takes it out of me. I am so thankful I got to see the family that loves me. Sunday I had to drive so I was very concious of what I was taking into my bed and with my low weight I am trying to up the amount I eat.

I have a lot going on health wise and most of it we can not do anything about, and the other part I am waiting to see Superman to see what we are going to do. We have a few things ruled out so its all up in the air at this point. Worse case they move my line is what we are thinking, I'm not looking forward to making people take time off to help me out a bit. I make people worry enough as it is let alone add more burden to their life. On top of that my lungs don't have a lot of give in them. I am often just exhausted and short of breath. I constantly try to keep up, but my lungs just make me so tired.

It could possibly be the amount of stuff that I have put on my body this week, it could be my poor weight that I am trying to remedy, or it could just be my lungs getting bad again. We got them stable before I am sure we can do it again. But there always so much uncertainty around my lungs.

Its once again a new year and I have no idea what this year holds. The thought of being told my lungs might get me to 32 with out needing new ones is also there. Its also  Tis the season for lung infections and with my new diagnosis of congenital IGG deficency is also playing a part in this I am sure to. I don't have the immune system to fight off being around new people, or a lot of people. Which comes with the holidays. Which I should be going back to my normal life soon with only a certain group of people round me. That should help with me not getting sick as well.

With a new year a couple days away I am going to remind myself this: Its ok to let your lungs have a say, its absolutely important for everyone to listen to their bodies. Check in with yourself and allow them to have a say in what you do, or your body in general. Be present in the moment. Be with who you love. Put your phone down and just embrace the people around you.

I try to make it a point to mediate every morning and do a small form of Yoga to let my body direct me on what we need that day. Do we need more Benadryl?? Do I need extra treatment?? Or just rest??

Whatever this new year brings you, do it with love, peace in your heart, and remind yourself that no matter what you are exactly where you need to be. Some days where we need to be is not ideal but its exactly the thing we need.

Love yall
~Poppet. 

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