What i wish people understood.

Things that I wish people knew, if not understood. Chronic illnesses has taught me many things, some only people that live with a disease will know or understand. Some people understand out of love and compassion. They are 1 in a million however one would not be more blessed to have them in their life. I know I am! Before I ramble like always here are things that i wish people understood or knew.

It's not that I don't want to: Because the reality is I do want to. I really do. However, I must choose between life and death. Or living in or out of the hospital. I often to get yelled at, put down, or walked out on. I wish they would know, I am literally waying my odds. Is what I am about to do going to put me in the hospital or kill me? If the answer is yes to one of them I am not going to hang out or be apart of it. If a person truly loves you, they will support you and say I understand what are you able to do.

I never asked for this disease. I can see the looks on your faces thru the screen "you got to be kidding me." No I am really not. Many times people blame things happening on me when its out of my control. Oh you got admitted again won't you ever learn not to put your health at risk. Your sick again!? Why didn't you strengthen your immune system? In bed again? Stop being lazy! Why did you put yourself in harms way?! I have never once intentionally put myself in harms way! I don't want to lay in bed all day. My immune system was suppressed for a reason on top of what it naturally is. Yes there are ways to strengthen but we have to way the risks. I do not want this disease. I was giving this life and I am going to take advantage and change the world.

Why can't you just compromise with me? Yes I have been asked this. Refer back to part one. I want to but again. Weighing the odds. If it's not the worth the risk. Why can't you just come over and sit with me?

Can;t you just wait to take your medication until later? No. No I can't. If I am telling you I need to take it, my body is telling me I need to take it.

Why don't you gain some weight it will help stabilize you? You don't think I have tried? I eat constantly, with what is safe for me to consume. I have to disease fighting against me. I constantly struggle with this. My labs read I am OK. And when they do not they are fast to treat. I have the justice league on my side. They are also fast to admit me. What I need is water weight to keep me where I need to be. If I am able to talk to you, I am where I need to be.


I am sure most of you are in awe and can't believe people have said this to me. I hear this often if not constantly. I have almost gotten to the point where I am just want to make a recording or a quick text to send this stuff to people when they start up. However, we take it with Grace. Or, frantic calls to Wonder Woman, freaking out cause I am upset once again.

Please learn to understand people with Chronic Illnesses.

Well I'm off for now.
Love Yall
~Poppet