Friday, February 22, 2013

Advocate

Recently as most of you know, I was admitted into a hospital a couple hours away from home. No one knew me there accept for Beth and Momma. And not many knew or know about POTS. Except for ONE RT that has a relative with my disease process. I had a staph infection in my line which my body did what it's suppose to FIGHT. Well with a fever comes dehydration. With being very sick comes dehydration. With POTS we are more likely to dehydrate faster. Of course I heard "POTS does not exist." Which of course I then feel like a cat in a corner being picked on. It's a matter of time before I snap. I know I should not. However after hours of "please call my doctor at home" One tends to get angry.

Wonder Woman, was of course and as always was at my defense. Please just listen to her and call her physician. You can't care for her like a normal patient. Also all my medications were pulled. My salt, potassium, inhalers, and mag! I was asking for all these. I was asking for breathing treatments, saline, all to hear "no." How can you pull my medications for a chronic illness, they are not whats making me sick. Then they'd come and tell me my levels were low - to dangerously low. Which my reply was fulling of sarcasm. My blood pressure was a bit high because I was having an asthma attack and had to beg for breathing treatments. I was told I was OK even though you can hear me breathe. Which I am use to all this and since I was to sick to fight it, I let wonder woman take over. Beth to! They had call 4 times for breathing treatments and they wanted to give me mag pills... Anyways! I finally get up stairs. Which is where my journey gets much easier.

My nurse that night was fabulous, she helped me get set, helped my Momma get set. Helped me with coffee, got me what we both needed. I did not get to see much of her but she did what she could to make me comortable. She also let Wonder Woman stay with me to help advocate for allergies and POTS. Also help me get up and down when needed. Being a fall risk means I need constant help. The day nurse was great to. My room mate was leaving, so of course the scare of chemicals came into play. She made sure no one cleaned the room, and she also helped me with food allergies. She seen 5 cases like me and knew how serious it can get and is. She was also filled with great stories and bonded with and Momma. She also helped defend me to the doctors and get my chronic meds back!

Food service. I am sure waiting for complaints, because of how I get treated back home. However, they were angels sent from heaven. I have never received such great care. I would say "they" but SHE helped me greatly, I guess we will call her Super girl (yes i love superhereo's). She made sure every dish she served me was safe, nothing was cross contaminated. I ate comfortably with out worry. Which is HUGE for me. I had the most beautiful fruit trays and salads. Options for vinegars. They are on FB, instagram, and I do believe Poppets FB. They were gorgeous! She got to thinking and asked her manager what other options I could have do to food allergies! I ended up with eggs, carrot sticks, hummus with pretzels, tea, coffee, and they were going to make bread but I was leaving that day. She made my stay there wonderful! I was so excited to see her on a daily basis!!

Being admitted away from was a scary and joyful process. I am so glad to be home and thankful for the friends i made!

Love yall
~Poppet!

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