Very few of you know this but I need to under go more testing for my blood. I probably have told 6 of you? Probably not even that many. I am sure most of you are thinking how much more testing are you going to put yourself through? Well, as much as it takes. I have dreams that need to be reach and something as stupid as blood disorders can't stop me. Really I am so close to Premed again I have applied for schools! If you know me someone stupid disease can't stop me i am way to stubborn!
Before yall go off on a rant and in the word of Wonder Woman "its not stupid" OK to me it is! This is why! I deal with my heart, my lungs, and dysautonomia. My heart does weird things and i have grown accustomed to palpitations. Once upon it time it would happen and i'd freak out and call my Momma and think it was something serious. Now chest pain and palpitations is normal life. Lungs? Well I am always short of breath. I can never breath well and I have grown use to it. Lets not forget about my central line with the rash, the stitches, and the blisters. Oh you can also scroll back and read about my ICU visit.
This all lead to me thinking. We get use to a certain amount of pain and misery. It becomes a part of our lives we get use to it and it becomes normal. It finally gets to the point it no longer bothers and worries you. I know I am not the only one living in pain, I am sure at one point we all become use to living in pain and just write it off as "normal." I personally have gotten use to being sick, I am use to chronic chest pain, shortness of breath, easy bruising, and I just smile and say I am OK. But really I am OK. However... Should we just get use to a certain amount of misery? OR should we continue to fight for answers in hopes that one day we can feel well? I personally fight for answers and the right "cocktail" so that I can lead a "misery free" life.
Today wasn't so bad health wise and that I am thankful for! I do not care that i take almost 10 medications to have a good day! I feel OK today and I am thankful for that! I will never know what its like to feel healthy and i really do not care anymore. I am glad i am at my range of OK, I am glad I am able to do what I can do, and I will always fights for answers to achieve my dreams and my goals. :-)
I am not sure where I was fully going with this but thats OK. I am going hop off and get this dressing changed and smile at the beautiful day I had even though it rained AGAIN!! lol Maybe 2 people will get that!
Love Yall :-)
Poppet ~
Tuesday, November 27, 2012
Wednesday, November 21, 2012
Office Day! ... Rambles
Its been awhile since I have updated this. I have been a bit busy lately. I think I have several appointments a week. Actually I think this was the only week I've only had ONE appointment and thats only because its a holiday week. The appointment that I had was an emergency appointment to. I had gotten another Chest infection and I caught this one early. Or well Rube's caught then Momma made me call Superman!
This infection I managed to stay out of the hospital which is good cause I didn't have to fight food allergies! An oddly enough I got sick the weekend of the Food Allergy walk for a cure that I had to miss because Momma was scared I was going to get sick. I ended up running around stressed out with a friend that day. I also found out I am allergic to Op-sites which are hypoallergenic dressings! My medical staff I hate to call them that I need to find a name for them is just confused at all the mess!
As for my POTS? Well my heart has acted up some. I know yesterday it was really high, my heart rate that is. Which is awful I was enjoying my time to! Isn't that always when your heart acts out? When its not suppose to? Haven't had many other issues lately. My IV did break though which caused some dehydration issues last week. I had NO idea it was broke. Not sure how long it was broke either, it just pooled in the bag i carry and leaked all over my Grandma's clean floor I had a puddle. HILARIOUS!! Yes I am a brat lol.
I see Cardio soon so hopefully I will have more of an update then. I know Superman keeps running blood work and reading over my other records and everything is coming back consistent with POTS. Which I had no idea there was a lot of blood work based around POTS. I will definitely be looking for research on this.
Well I am off to find Wonder Woman. I am here with her today and seen her long enough to ask for coffee :-D!!
Hope all is well outside of wonderland :-D
Love Poppet~
This infection I managed to stay out of the hospital which is good cause I didn't have to fight food allergies! An oddly enough I got sick the weekend of the Food Allergy walk for a cure that I had to miss because Momma was scared I was going to get sick. I ended up running around stressed out with a friend that day. I also found out I am allergic to Op-sites which are hypoallergenic dressings! My medical staff I hate to call them that I need to find a name for them is just confused at all the mess!
As for my POTS? Well my heart has acted up some. I know yesterday it was really high, my heart rate that is. Which is awful I was enjoying my time to! Isn't that always when your heart acts out? When its not suppose to? Haven't had many other issues lately. My IV did break though which caused some dehydration issues last week. I had NO idea it was broke. Not sure how long it was broke either, it just pooled in the bag i carry and leaked all over my Grandma's clean floor I had a puddle. HILARIOUS!! Yes I am a brat lol.
I see Cardio soon so hopefully I will have more of an update then. I know Superman keeps running blood work and reading over my other records and everything is coming back consistent with POTS. Which I had no idea there was a lot of blood work based around POTS. I will definitely be looking for research on this.
Well I am off to find Wonder Woman. I am here with her today and seen her long enough to ask for coffee :-D!!
Hope all is well outside of wonderland :-D
Love Poppet~
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