Update

Its been almost 2 weeks since I last updated. I have a few drafts on here where I started and just left them. I may come back to them at a later date but I decided to start fresh.

My health hasn't been the greatest in fact it has been a bit poor lately. A few of you know this because I or Wonder Woman has told you what has been going on and the storms haven't helped. My oxygen is on 3 and I still huff and puff. My doctor today (not Superman) took one look at me and goes you look sick. Oh if you knew, and I explained the last 6 months to him and everything that has been going on and we are at the point if my levels are a point to low we treat. When did my life come to this?? No idea but we accept things and pray that things work out. We pray that I can improve just enough. A little improvement at this point is better then nothing. And I try not to let all this get down but sometimes it does get frustrating because I have so much I want to do with my life and hitting a brick wall full force isn't the way to do it. Which is usually how my health works. I have this stubborn attitude and I won't stop my dreams because some disease determines my life. But even I have my moments were i just cry. I mean really who doesn't??

It does get me down but I am not so worried about it because I have the best team I could even begin to ask for. I have this team of medical professionals that see's me as a human. To them I am Poppet, I am not just another girl with CF, which is so odd to see in the medical but everyone is always working so hard to keep me stable and get my health to improve. They work effortlessly to help me and they even stand behind who I am. I have gone thru the ringer to get my Justice League fine tuned. I have been thru some not so great doctors to get the wonderful team I have and it was worth because I know they will do whatever they can to get me back to my old crazy self as some of them like to describe it lol.

Then not to long ago my friend Z sent me this song called Impossible the original lead singer of Fly Leaf wrote it and its under her name but I alway spell it wrong, and it talks about how I can barely breathe but I still sing, I can't run but all these miles have passed, and that every day I live the impossible and see all the beautiful things around me. And after i finally listened to I bugged him in Classic Poppet fashion "OMG that is my theme song!!" I mention this because she talks about how giving up is never an option and that every time things happen I remember I have gotten thru a lot of crap up until this point. Which I do thank my Prayer Warriors for because if it wasn't for their endless dedication of getting on their knees and praying with me, I am not so sure how far I would have gotten. All the seniors at church know whats going before I can update anyone. Classic church fashion right?? But I can't be mad about it at all, really quite thankful because prayers work!! But now that I am off track...

Giving up is not and never will be an option. I will fight for this life and for my health. Tomorrow isn't guaranteed for anyone but my life tends to throw it in peoples face and I say that all the time. I just want to teach people how gorgeous life is, how a simple smile can change someones day, and there will always be some type of hope out there. And to remind people to stop and watch the birds. Random story again. It was snowing yesterday morning and my breathing was HORRID, and I opened the blinds for Rubes the Cat to pear out an torment the little squirrel the way she alway does, who we call Fizzle Bottom. Theres this little tree right out my windows and these to little cardinals were perched on the tree and their color on the white was so gorgeous and I just sat and stared at them, and to get on FB to find out the All Father was doing the exact same thing down the street with different Cardinals!! Oh and I also check up on the Ferry Bird quite often to I might have to share a pick of him he's a cute little dude.

But this is a bit long so i'll hop off here
Love Y'all
~Poppet

Not a lot going on

You know I do not know where i'd be with out Wonder Woman. Recently I went to Founders Day at her job, and we left later then we wanted to and didn't get good parking but parked as close as we could and I just looked at the distance and was pretty intimidated by the long walk and where it would leave me. Breathless, chest pain, and wheezing. Without hesitating Wonder Woman looked at me and said "you can do it lets go." I made it!! I felt like I ran a marathon and someone had punched me in chest but I made it. Oh and did you know its not proper to wear Skulls to a "sunday best" event?? Yeah me either... But I tried to get away with it!! Then by the time we made it lunch my BP was a bit low and almost thru up all over the waiter. Poor Wonder Woman once again. "Your fine you'll get thru it." Which I did but wasn't sure about it.

I haven't been out much since with all the weather. It messes with my breathing to the point I have to cough to get a return on my line because there is much pressure built up in my chest. My lungs are bad as they are to top it off the weather makes them worse. I keep putting things off that I need to do but I hope people understand.

Have I updated on my new bed yet?? Well I am sleeping better but my lungs are still quite poor. I am not sure they are gonna improve much and which I have to come to except thats a part of this life. Sometimes things happen and well my lungs take the brunt end of it. I know Monday I tried to put my oxygen on 2 and almost passed out I turned the oxygen back up and was fine. Been ok most of the week nothing to concerning to up date on. Well health wise that is.

I promised the All Father I'd right a blog on the medical field and where I think it needs to change as a patient. Oh like not sewing when you have a listed side effect?? I have many thought and ideas on this but not sure where to start on this. Not sure how to organize my thoughts around this subject with out putting my opinion to much in it. He assures me one person can change the world and i PRAY I can. I'd love to see change. I'd love to see the world a happier place.

Then theirs Batman who had a dream I was a Mommy and been convinced ever since a Mommy is what I should be. It kinda freaks me out that a child could not only end up like me but have my diereses to. It's a REAL issue that many times gets over looked by people. I am not saying him persay but in general. My diseases are Genetic...

Other wise I am gonna start figuring out how to publish a cook book. I am so unsure of how to go about doing all this but I am sure I can do this. I have the recipes and stuff set but need to get things organized and figure out who to get to publish me.

But I guess I best get off here
Love Y'all
~Poppet