Recently as most of you know, I was admitted into a hospital a couple hours away from home. No one knew me there accept for Beth and Momma. And not many knew or know about POTS. Except for ONE RT that has a relative with my disease process. I had a staph infection in my line which my body did what it's suppose to FIGHT. Well with a fever comes dehydration. With being very sick comes dehydration. With POTS we are more likely to dehydrate faster. Of course I heard "POTS does not exist." Which of course I then feel like a cat in a corner being picked on. It's a matter of time before I snap. I know I should not. However after hours of "please call my doctor at home" One tends to get angry.
Wonder Woman, was of course and as always was at my defense. Please just listen to her and call her physician. You can't care for her like a normal patient. Also all my medications were pulled. My salt, potassium, inhalers, and mag! I was asking for all these. I was asking for breathing treatments, saline, all to hear "no." How can you pull my medications for a chronic illness, they are not whats making me sick. Then they'd come and tell me my levels were low - to dangerously low. Which my reply was fulling of sarcasm. My blood pressure was a bit high because I was having an asthma attack and had to beg for breathing treatments. I was told I was OK even though you can hear me breathe. Which I am use to all this and since I was to sick to fight it, I let wonder woman take over. Beth to! They had call 4 times for breathing treatments and they wanted to give me mag pills... Anyways! I finally get up stairs. Which is where my journey gets much easier.
My nurse that night was fabulous, she helped me get set, helped my Momma get set. Helped me with coffee, got me what we both needed. I did not get to see much of her but she did what she could to make me comortable. She also let Wonder Woman stay with me to help advocate for allergies and POTS. Also help me get up and down when needed. Being a fall risk means I need constant help. The day nurse was great to. My room mate was leaving, so of course the scare of chemicals came into play. She made sure no one cleaned the room, and she also helped me with food allergies. She seen 5 cases like me and knew how serious it can get and is. She was also filled with great stories and bonded with and Momma. She also helped defend me to the doctors and get my chronic meds back!
Food service. I am sure waiting for complaints, because of how I get treated back home. However, they were angels sent from heaven. I have never received such great care. I would say "they" but SHE helped me greatly, I guess we will call her Super girl (yes i love superhereo's). She made sure every dish she served me was safe, nothing was cross contaminated. I ate comfortably with out worry. Which is HUGE for me. I had the most beautiful fruit trays and salads. Options for vinegars. They are on FB, instagram, and I do believe Poppets FB. They were gorgeous! She got to thinking and asked her manager what other options I could have do to food allergies! I ended up with eggs, carrot sticks, hummus with pretzels, tea, coffee, and they were going to make bread but I was leaving that day. She made my stay there wonderful! I was so excited to see her on a daily basis!!
Being admitted away from was a scary and joyful process. I am so glad to be home and thankful for the friends i made!
Love yall
~Poppet!
Friday, February 22, 2013
Saturday, February 16, 2013
Superman to the rescue!
As most know I was going to a teaching hospital for blood work. We (Me and Beth) left early enough to find out where everything was at. I am sure both our Momma's were shocked at this event. This not something we often do. I get to hematology and they basically said what i pretty much need a pulmologist O.o I traveled a couple hours to hear this?!? Oh well at least we had this really cool to place to shop! Got the cutest hair pieces haha. Well later that night it all went down hill from there. WAY down hill.
I woke up in the middle of the night as I always do, freezing. I got up and almost passed out it was an immediate get back into bed and lay down type thing. After getting very sick and laughing about it (yes we did laugh at all this) we decided lets lay down and get some rest. Not much later we were on are way to the ER i was burning up and freezing short of breath. I have severe asthma, so this could have been bad and i used my neb. So beth got in the car and to the ER. The triage nurse told me I am OK i am pink with 100 SATs. OK not normal for a couple reasons in me. One i was flushed not pink huge difference. My norm SATs max at 96 oh and if you can HEAR someone breathe there is OBVIOUSLY a problem. Then i told her how sick I was and i was dehydrated. "You can't be dehydrated from throwing up once" I told her nicely I have POTS I live with chronic dehydration and chronic saline. "There's no such thing as POTS" O.o THEN i was informed a temp of 98 is NOT a fever. I told her what my norm was and it went up a degree since earlier. She rolled her eyes at me and took me back. Met with doc, and not long later i am get 2 liters of fluids. Ran at the same time. I've also had over 12 liters Since i've been here.
So another Doc see's me and cancel's all my Chronic Meds my temps now over 100 and their fighting my alllergies, wasn;t let me have albuteral as needed, would NOT call my doctor, and of course started the all in your head thing. I can not begin to explain how this erks my every last nerve. So I do what I do best. Yes thats right call Superman. He told me to tell the Doc to page him. So I did just that 6 hours later "he was to busy to call my doc" with rationalization "we have your records" Um do to POTS and my asthma I need a special care he KNOWS how to treat me. If you do not have time to properly care for your patient pass me off. So to get him to call Superman, I told him I wanted transfered back home to my hospital with my doctor so I receive proper care. Then he asked me why I would to leave here to go back home no one ever ask to be transfered they asked to be trasnfered in. Yep I let him have it. I got my doctor to call Superman and I got my proper care!
Then I got my offical diagnosis this AM I have a blood infection. Yes my blood is infected! Of course this egotistical doctors are like its a good thing you were close enough to come HERE. Um I would have gone to the ER back home to! I am on some heavy antibiotics and doing fine. Can't wait to be back home with doctors that truly care! I am so tired of these docs here its so ridiculous! I get so frusterated when I know my health and I advocate for myself and get pushed down and told I am full of. Momma had to drop LAWS to get him even so much as listen to me. It should not be that way, Doctors should listen to us. Some of us know about our health!
Well I must be off! I need to convince them to pull the leads!
Love Yall
Poppet!
I woke up in the middle of the night as I always do, freezing. I got up and almost passed out it was an immediate get back into bed and lay down type thing. After getting very sick and laughing about it (yes we did laugh at all this) we decided lets lay down and get some rest. Not much later we were on are way to the ER i was burning up and freezing short of breath. I have severe asthma, so this could have been bad and i used my neb. So beth got in the car and to the ER. The triage nurse told me I am OK i am pink with 100 SATs. OK not normal for a couple reasons in me. One i was flushed not pink huge difference. My norm SATs max at 96 oh and if you can HEAR someone breathe there is OBVIOUSLY a problem. Then i told her how sick I was and i was dehydrated. "You can't be dehydrated from throwing up once" I told her nicely I have POTS I live with chronic dehydration and chronic saline. "There's no such thing as POTS" O.o THEN i was informed a temp of 98 is NOT a fever. I told her what my norm was and it went up a degree since earlier. She rolled her eyes at me and took me back. Met with doc, and not long later i am get 2 liters of fluids. Ran at the same time. I've also had over 12 liters Since i've been here.
So another Doc see's me and cancel's all my Chronic Meds my temps now over 100 and their fighting my alllergies, wasn;t let me have albuteral as needed, would NOT call my doctor, and of course started the all in your head thing. I can not begin to explain how this erks my every last nerve. So I do what I do best. Yes thats right call Superman. He told me to tell the Doc to page him. So I did just that 6 hours later "he was to busy to call my doc" with rationalization "we have your records" Um do to POTS and my asthma I need a special care he KNOWS how to treat me. If you do not have time to properly care for your patient pass me off. So to get him to call Superman, I told him I wanted transfered back home to my hospital with my doctor so I receive proper care. Then he asked me why I would to leave here to go back home no one ever ask to be transfered they asked to be trasnfered in. Yep I let him have it. I got my doctor to call Superman and I got my proper care!
Then I got my offical diagnosis this AM I have a blood infection. Yes my blood is infected! Of course this egotistical doctors are like its a good thing you were close enough to come HERE. Um I would have gone to the ER back home to! I am on some heavy antibiotics and doing fine. Can't wait to be back home with doctors that truly care! I am so tired of these docs here its so ridiculous! I get so frusterated when I know my health and I advocate for myself and get pushed down and told I am full of. Momma had to drop LAWS to get him even so much as listen to me. It should not be that way, Doctors should listen to us. Some of us know about our health!
Well I must be off! I need to convince them to pull the leads!
Love Yall
Poppet!
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