I don't know where to start so I will start from the beginning.
I had a follow up with my Cystic Fibrosis center and I could not do my vest for a week with a new line so I thought my lung function would be off but I didn't realize HOW much it would be down. It was down 20% which is very significant with this disease. CF guidelines are 10% drop you get admitted for what is called an exasperation. Which all technical terms aside I had a nasty lung infection I did not know about because I felt fine. I called Wonder Woman, let Spider Maker know because we had gaming plans. And told them all the big big antibiotics we they were gonna start with.
Well it turns out im allergic to meropenom, yes I know lets be shocked about this. I was ok with all other antibiotics and then the next morning it started. The Resident that thinks he knows everything and lacks listening skills to under stand what's going on. I wanted my fluid which I got but they were refusing my potassium which I take a LOT. Which first morning it lead to tears. Plain out tears because I was to being heard. Then he told me that he is a doctor and he knew what POTS was and I needed to understand how the kidneys worked... This didn't end well. I told my nurse what was up and the main doc got involved and solved it. Got thru the day next morning same thing. I told the resident I need my meds and he needs to listen to me to understand. Even the doctor explained to him that some bodies just work differently and we need to listen. The resident was pulled and the group was made aware that we do not touch my meds. I am hear for my lungs.
The other issue was my steady weight loss with out trying aka eating my weight in food and having a BMI of 17. Im not joking. I am no longer allowed to be vegan and meat just does not sit well at all. I didn't even keep it down last night. Its hard to stomach so I am gonna try something way more natural then whatever that was and lean towards more ethical forms of meat. And my weight is still dropping. Its down again so I need to order some formula, I need to get meat, I have to cut out most to all process foods, and lean towards food that does not cause inflammation.
But know I am ok!!
I have been home long so I am gonna snug the Rubes and enjoy some coffee lol
Love Y'all
~Poppet
