My lungs are in a bit of a bad situation. I have a cold which means it went strait to my lungs and I've been on a lot of meds. I always worried about getting admitted because my lungs are incredibly fragile and I'm coming up on the age that my lungs life span is. The hospitals have a lot of icky bugs in them and it's Christmas. I don't want to mess up Christmas.
I was just talking to the All Father today about my health and whether one triggered the other or something like that and our crazy reality is I was just simply born with 3 incredibly rare disease by some random chance. Blessing?? Curse?? I guess thats all on who you ask?? Controversial as it may be. My diseases and my journey has made me a better person. Yes. You got that. A better person. Tho I had these disease all my life I was even rarer in the fact I didn't know until adult hood plus the YEARS it took diagnose. I was your stereotypical wild child. But I have had symptoms all my life I just wrote them off.
But my disease has taught me so much about life. And sometimes you need people to remind you while your crying out of frustration. No you dont understand I gotta go see Santie Clause and he doesn't come to the hospital. Yes he is real. This is my life and yes at times its absolutely on a tight wire but this is my life. Yes I said that twice because its so important. And yes that is what people point out to me. And so often I have chose to stand and face it. I have chose to embrace it and I have chose to fight for it. I choose every day to get up, take my meds, drop everything I am doing to take more meds. When people tell me I couldn't do it I just smile and say its not the hardest thing ive gone thru.
I can tell you horror stories about all the things my diseases have done to me. But I can also oh my gosh this cat is obsessed with my desk. Looks like we need to have another talk. Anyways while my cat is trying to figure out how she got into that situation. She is one of the many blessings of this disease. The point is, because of my disease I have had many amazing opportunities. I see life in such a simple way. Life is such an amazing beautiful thing. We make it so much harder then it has to be. Yes people go thru hell, I go thru it. But life is not about finding this bigger purpose, your life is the bigger purpose. Your journey is the purpose. Its not made to be easy its made to be lived. Its made to be experienced. And yes the pain and the heart ache only pushes you to be a better person. That's if its what we choose. Like background says, yes its by Steven Tyler. "Every life has a measure of sorrow sometimes thats what awakens us."
At the end of the day I was simply just born this way. Nothing is going to change that. So why not embrace it and dance on.
Love y'all
~poppet
I was just talking to the All Father today about my health and whether one triggered the other or something like that and our crazy reality is I was just simply born with 3 incredibly rare disease by some random chance. Blessing?? Curse?? I guess thats all on who you ask?? Controversial as it may be. My diseases and my journey has made me a better person. Yes. You got that. A better person. Tho I had these disease all my life I was even rarer in the fact I didn't know until adult hood plus the YEARS it took diagnose. I was your stereotypical wild child. But I have had symptoms all my life I just wrote them off.
But my disease has taught me so much about life. And sometimes you need people to remind you while your crying out of frustration. No you dont understand I gotta go see Santie Clause and he doesn't come to the hospital. Yes he is real. This is my life and yes at times its absolutely on a tight wire but this is my life. Yes I said that twice because its so important. And yes that is what people point out to me. And so often I have chose to stand and face it. I have chose to embrace it and I have chose to fight for it. I choose every day to get up, take my meds, drop everything I am doing to take more meds. When people tell me I couldn't do it I just smile and say its not the hardest thing ive gone thru.
I can tell you horror stories about all the things my diseases have done to me. But I can also oh my gosh this cat is obsessed with my desk. Looks like we need to have another talk. Anyways while my cat is trying to figure out how she got into that situation. She is one of the many blessings of this disease. The point is, because of my disease I have had many amazing opportunities. I see life in such a simple way. Life is such an amazing beautiful thing. We make it so much harder then it has to be. Yes people go thru hell, I go thru it. But life is not about finding this bigger purpose, your life is the bigger purpose. Your journey is the purpose. Its not made to be easy its made to be lived. Its made to be experienced. And yes the pain and the heart ache only pushes you to be a better person. That's if its what we choose. Like background says, yes its by Steven Tyler. "Every life has a measure of sorrow sometimes thats what awakens us."
At the end of the day I was simply just born this way. Nothing is going to change that. So why not embrace it and dance on.
Love y'all
~poppet
