Its been a bit since I updated. There really hasn't been much to update about. Most of my days are spent sitting around mostly coloring to reduce my stress levels. I have been out a few time which has consistently left my breathless, tired, and sick. I have come home gasping for air at times laying down with Wonder Woman connecting me to an IV. Its almost a never ending fight but I mean its no different from any other day really. Some days I am just breathless and other days I have enough air in my lungs to get by for the day. But this never an excuse or a reason to not get things done. Life doesn't stop because I don't feel good and I refuse to let life pass me by because I am short of breath or a bit poorly. I only have one life to live and to let some silly disease stop me from doing what I love isn't going to happen while I have a say in it.
I am constantly reminded how blessed I am to be 29 and still have my own lungs and still be able to get out and do things some days. I have worked so hard to get where I am and I will continue to work to keep these lungs working well enough. Its an endless battle, there is NO end to this at all, ever. I have such an amazing medical team that has worked endlessly with me to stay as healthy as I can. Its not an easy battle it takes endless work. You battle the same thing day in and day out. You go to bed every night knowing all that work you did that day has been done all again the next day. There is no break, there is no oh well I will skip a treatment. There is no maybe tomorrow... You get up no matter how tired or sick you are. You get up, you do treatment you know is gonna make you sick. You sit on a vest, you use devices, and sometimes you have someone pound on your back to breathe. Me well I also connected to an IV to help keep things working. I take a handful of pills a couple times a day to just get up and do it again. I was half joking with Lady Sif that I needed a red cross on a bag she told me that wasn't a terrible idea since HALF my bag if not more is medication so when I am out and about I can stop and do the treatment I need to do. My health doesn't take a break, it doesn't take a vacation at all. Its endless work.
Some days I swear my battle is getting harder and I refuse to let this stop me. And thats OK I am tough girl I can handle this. I am so blessed that my friends take time out of there day to check up on me and see how I am. To come over and enjoy there time with me. Or link Wiis with me so we can battle it out.
So I am paying more attention to the TV then I am to this blog which is shocking but such a good show so I will leave you with this. Never put off things you can do today and make time for those you love.
Love Y'all
~Poppet
I am constantly reminded how blessed I am to be 29 and still have my own lungs and still be able to get out and do things some days. I have worked so hard to get where I am and I will continue to work to keep these lungs working well enough. Its an endless battle, there is NO end to this at all, ever. I have such an amazing medical team that has worked endlessly with me to stay as healthy as I can. Its not an easy battle it takes endless work. You battle the same thing day in and day out. You go to bed every night knowing all that work you did that day has been done all again the next day. There is no break, there is no oh well I will skip a treatment. There is no maybe tomorrow... You get up no matter how tired or sick you are. You get up, you do treatment you know is gonna make you sick. You sit on a vest, you use devices, and sometimes you have someone pound on your back to breathe. Me well I also connected to an IV to help keep things working. I take a handful of pills a couple times a day to just get up and do it again. I was half joking with Lady Sif that I needed a red cross on a bag she told me that wasn't a terrible idea since HALF my bag if not more is medication so when I am out and about I can stop and do the treatment I need to do. My health doesn't take a break, it doesn't take a vacation at all. Its endless work.
Some days I swear my battle is getting harder and I refuse to let this stop me. And thats OK I am tough girl I can handle this. I am so blessed that my friends take time out of there day to check up on me and see how I am. To come over and enjoy there time with me. Or link Wiis with me so we can battle it out.
So I am paying more attention to the TV then I am to this blog which is shocking but such a good show so I will leave you with this. Never put off things you can do today and make time for those you love.
Love Y'all
~Poppet
