Tuesday, July 30, 2013

Tattoo's and llfe

I know most people do not agree with tattoo's or yell me because I have a disease and I got a new tattoo. Let me start by saying: I had physician's approval before getting a tattoo. I told Superman after he saw my old one, I want another one but Wonder Woman says no because of my health. He told as long as they are not in easy bleed areas I was more then allowed to get one. Second: I had a nurse monitoring me the entire time. That knows how to pick up on physical signs I am a struggling. I went thru the tattoo fine! (tunneled lines hurt way worse the chest tattoos). Third: Though most do not agree with getting tattoo's this is my emotional way of healing. This is a piece of art that represents my battle no more no less. Please no negative comments about my tattoo/life choices.

If you see the post before this. Wonder Woman and I got matching tattoo's, I came up with the design and she got it put on her foot with my name under it... Yes that's right Crissie is my real name. I go by Poppet cause a very lovely and wonderful friend of mine calls me that. As for the tattoo.There is as always a story behind it. Though I will not go much in depth, because I do not talk about my ICU visit much at all. It has everything to do with that. It was a battle of life and death, my eyes tear up every time I think of that night that turned into a week. But Wonder Woman put being my Momma aside and did what she had to do to help keep me alive. She did what most nurses do as well, tell a doctor what needs to be ordered! lol Thankfully she new my entire staff! Both of the EKGs on me and her are my own. Its where I started to wear I am now. Even though I look like a normal person I have an awful heart and awful lungs. On top of my dysautonomia (pots). I think to myself many times this disease they call dysautonomia would be a bit easier if it wasn't for those 2 disease on top of this one. I do have more then just POTS. Though its what I normally talk about because it's such a pain its the reason why my kidney's, eyes, digestion, and my heart rate. But there is more to my personal health then just that.
Though most people think I am a healthy person because of how I look! Which drives me nuts...

Dysautonomia is hard disease to battle. Not many people believe in it. There is not much research, which makes the disease a pain to treat. There is very few medications that they prescribe for it and most have a lengthy medical history of not working at all. Most will tell you Saline is there favorite. I will tell you this as well. It's what makes me feel the best. With out things get bad! I want to the farm last week or the week before. I was out there for 15 minutes and I felt awful but just wrote it off as asthma because i was short of breath. I wound up at target afterwards was sitting on the floor looking at makeup remover stood up slowly and almost collapsed. Came home connected up and within a half of bag i was fine!

Well I guess this is long enough haha
Off to Wonderland
Love
Poppet~


Thursday, July 25, 2013